United Arab Emirates, Dubai, May 20, 2013: The Dubai Health Authority's Thalassemia Centre in partnership with Beit Al Khair Society and Rotana Group of Hotels recently introduced the ‘help' campaign across the UAE.
The first donation received as part of the ‘help' campaign was Dh 10,000 from Jabel Ali Free Zone Authority (JAFZA).
The Thalassemia centre opened a bank account specifically for collecting funds for Thalassemia patients as part of the ongoing ‘help' campaign.
Doctors, administrators, social workers, nurses and patients from Dubai took part in workshops and round table discussions on best practices, treatments, management issues and challenges facing Thalassemia patients.
Although some 2,000 patients are registered in the UAE, the Thalassemia Centre estimates that one in 12 people in the UAE are carriers of the disease. As most people aren't aware they're carriers, the Centre advises screening for the condition. Being an inherited disease, chances of developing Thalassemia symptoms increase to 25% when both parents are carriers.
Thalassemia occurs when there is a defect in the gene that controls production of proteins in the hemoglobin, which can lead to anemias. Thalassemia can be managed by following treatment plans, monthly blood transfusions, folate supplements. The only curative treatment for Thalassemia is a bone marrow stem cell transplant, but only a small proportion of patients are able to find a good donor match, and the procedure is risky.
The Dubai Thalassemia Centre has been running Thalassemia activities since its opening in 1989, and is the first ambulatory centre worldwide outside the USA to be awarded Joint Commission International (JCI) accreditation.
The centre is located in the premises of Latifa Hospital. People who are interested to donate and/or volunteer their services may contact the centre on: 009714 2193794.
Press release from the Dubai Health Authority: